Wednesday, November 24, 2010
Friday, November 19, 2010
I'm participating in Love That Max photo carnival by posting my favorite picture of Jack.
I love this picture because it captures the very essence of Jack -- HAPPY! There aren't too many babies that would be happy while on nasal CPAP. Jack was about three months old in this picture. This was before the trach, the vent and the g-tube. This was before we had any idea that Jack had a neuromuscular disease. If only I had known where we were headed, I would not have been so stressed out about something as non-invasive as nasal CPAP. I would have held, snuggled and cuddled with this little boy so much more than I did.
Have a great weekend my friends!
(So much for a blogging hiatus, eh?)
Tuesday, November 16, 2010
As if I need something else to get the tears flowing these days. I downloaded Annie Lennox's new Christmas Album (A Christmas Cornucopia) from iTunes tonight and heard the song "Universal Child" for the first time. I can't imagine that this song won't move every parent to tears, but especially those of us with kids who struggle every day just to live and do those things that too many take for granted - our extraordinary children who are on this earth to teach us all to love unconditionally, appreciate the simple things, accept what we cannot control and to persevere through adversity.
I invite you to join me in a good cry .............
AND, thank you for all your kind and caring words. Although I may not sign on to blog as often for awhile, I do get all of your comments via email. So, know that your comments are received and much appreciated. I love you guys!
Saturday, November 13, 2010
So, I wrote a post on Friday night that I published and then deleted. It was way too "woe is me" that even I couldn't stand it. I should know to NEVER write blog posts on Friday nights. Friday nights have always been the toughest day of the week for me. I could give you all the reasons why, but if you don't live the life, you won't get it and if you do live the life, you already get it, so I'll spare you the explanation.
Things are just really hard for me right now. I miss my mom. It's hard losing your mom. It's exceptionally hard when you didn't get to see her before she died and when you didn't take the opportunity to tell her things you wish you had before she died. I find myself in tears every day.