tag:blogger.com,1999:blog-29916680.post3681011500208832319..comments2023-04-04T03:24:36.079-07:00Comments on Jack's Journey and Then Some: Chugging AlongAnnhttp://www.blogger.com/profile/10834197308019791700noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-29916680.post-74538245205890024612013-01-23T10:45:33.291-07:002013-01-23T10:45:33.291-07:00Ann I'm not sure if that train picture is buco...Ann I'm not sure if that train picture is bucolic or not, it kind of makes me feel like I'm about to get flattened. Perhaps that's what you like about it. I know what you mean about the in between periods. When you are in survival mode and it ends you are kind of left with the "now what" feeling. I'm glad you were able to go hiking. I imagine it is good for the soul and helps you recharge.<br /><br />I know my brother (who has severe MD) will not go under anesthesia due to the risk. He has had several surgeries while awake. Not a great option for a kid. Of course with Jack already being on a vent, maybe there is less risk. Still, that's a tough call for a teeth cleaning. Maybe they could do a partial cleaning without putting him under? <br /><br />Have a good week!Susanhttps://www.blogger.com/profile/16092188894818322564noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-27037252719631076492013-01-22T06:58:30.664-07:002013-01-22T06:58:30.664-07:00I am so glad to see your post today. You've r...I am so glad to see your post today. You've really been on my mind a lot lately. I was wondering how you were doing. I'm glad to see you got a hike in. That's so great and I know just how important those moments are. There are people that think I'm crazy for running like I do. But, to be honest, running OUTSIDE of the house is sometimes easier than just being home. Weird. And sad, too. <br /><br />Anyway, know I'm always thinking of you and Jack. <br /><br />Love ya,<br />Christy xoChristyhttps://www.blogger.com/profile/12158503749591171395noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-62485292644815613422013-01-22T03:18:52.145-07:002013-01-22T03:18:52.145-07:00Ah, the difficult decision of allowing full anesth...Ah, the difficult decision of allowing full anesthesia for a teeth cleaning. I would personally forgo it because of his weakened heart. And I know enough to not say, 'you know him best', because while that is true, the delicate balance our kids are in is mirrored in our fragile method of decision making. I can rely on my intuition, since I have completely understood it and given myself to it, but others may need to think things through with never a clear cut answer waiting at the end of the deliberation.<br /><br />It's funny how, to some extent, we have to live our kids' lives for them. And when we are their surrogate life, we are trying our hardest to do right by them.Eric Fischerhttps://www.blogger.com/profile/02471331868560587898noreply@blogger.com