tag:blogger.com,1999:blog-29916680.post5721582698687806847..comments2023-04-04T03:24:36.079-07:00Comments on Jack's Journey and Then Some: Right there in Black and WhiteAnnhttp://www.blogger.com/profile/10834197308019791700noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-29916680.post-37224239000284337802010-02-05T20:07:10.210-07:002010-02-05T20:07:10.210-07:00I managed to block out all that the genetist said...I managed to block out all that the genetist said to me so much that I have to have my sister in law read me what I told her that night because I didn't want to remember. It didn't change life day to day for us. <br /><br />Perhaps joining will help you all in some small way. Thanks for your posts.Danahttps://www.blogger.com/profile/12462627805690136815noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-27818105057592399622010-02-04T14:06:36.068-07:002010-02-04T14:06:36.068-07:00(((((HUGS)))))(((((HUGS)))))Susanhttps://www.blogger.com/profile/16092188894818322564noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-57967547685446724712010-02-04T10:55:10.344-07:002010-02-04T10:55:10.344-07:00Big hugs Ann. Crappy isn't a good enough word...Big hugs Ann. Crappy isn't a good enough word for all of it any way you slice it.Anonymoushttps://www.blogger.com/profile/00174806361894051100noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-52857160544891558882010-02-03T19:06:34.798-07:002010-02-03T19:06:34.798-07:00I will not only join you on that island. I will b...I will not only join you on that island. I will bring the beer.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-29916680.post-19363008474460178222010-02-03T18:43:31.841-07:002010-02-03T18:43:31.841-07:00Yes, I would like to go to that island with you? ...Yes, I would like to go to that island with you? When can I start packing? xoxox KarenKarennoreply@blogger.comtag:blogger.com,1999:blog-29916680.post-73796820031317176072010-02-03T18:32:32.494-07:002010-02-03T18:32:32.494-07:00I attended a meeting held by a doctor who speciali...I attended a meeting held by a doctor who specializes in mito disease from Boston. He was excited to talk about the latest and greatest on the improvements they've made in diagnosing different forms of the disorder. Despite all this, there have been no new forms of treatment. I left trying to understand what the point of the meeting was.....<br /><br />Can I come to your Island of Ignorance is Bliss? I'll bring margaritas.<br /><br />Stacey MAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-29916680.post-76064839428919953012010-02-03T13:07:44.477-07:002010-02-03T13:07:44.477-07:00We think of you often. It is interesting, this ph...We think of you often. It is interesting, this phrase "ignorance is bliss." You already know how to take care of all of Jack's physical and emotional needs, so I can understand how the constant reminders don't really help. We're praying for your family and great job supporting the cure.<br /><br />JennaJohn and Jenna Gensichttps://www.blogger.com/profile/15404726548055060185noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-37249931575247246362010-02-03T10:21:16.239-07:002010-02-03T10:21:16.239-07:00I'm so sorry Ann, I'd happily join you on ...I'm so sorry Ann, I'd happily join you on a trip to ignorance and bliss! Funny you should bring this up now, Sam has just been doing some assessments at school and there is so much he can't do. I just try to see the positive - what he CAN do, and hope that will see us through! (((HUGS)))worthyhttps://www.blogger.com/profile/14596973069315012830noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-35500734360718640932010-02-03T09:13:26.646-07:002010-02-03T09:13:26.646-07:00I understand a little Ann. Non-progressive can mea...I understand a little Ann. Non-progressive can mean just stuck in the muck and mire with no hope for change.<br /><br />I sometimes feel guilty that Ben got a gentler roll of the dice than Jack. I wish it could be different for you. <br /><br />You've heard and discovered all the positive slants and shiny clouds out there, but sometimes it's really okay to yell and scream about the shittiness of it all. We all love you and know you'll see this through with incredible grace, ever bending and never breaking.ssouthhttps://www.blogger.com/profile/06621157647829439359noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-77689162252740478842010-02-03T04:16:27.465-07:002010-02-03T04:16:27.465-07:00I'm right there with you, Ann. I was just havi...I'm right there with you, Ann. I was just having a conversation about this with a friend...how I try not to think about Gabe's diagoneses too often... it hurts too badly. It's just easier most of the time to just keep plowing forward and not think about it too much. When I stop too long and reflect, the sadness hits. I am so thankful to know I'm not leading this life alone and there are friends like you to lean on for encouragement and support. I'm proud of you for what you're doing in supporting Cure MD...Love ya!The Marini'shttps://www.blogger.com/profile/13173478315391586356noreply@blogger.com