tag:blogger.com,1999:blog-29916680.post6586497344157900480..comments2023-04-04T03:24:36.079-07:00Comments on Jack's Journey and Then Some: StrugglingAnnhttp://www.blogger.com/profile/10834197308019791700noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-29916680.post-1010071523287791052013-07-24T10:08:50.255-07:002013-07-24T10:08:50.255-07:00Hi Ann, I'm Kathryn my son is 16 is spastic qu...Hi Ann, I'm Kathryn my son is 16 is spastic quad CP, has GJtube, trached & on a vent. I think I could fit in your sorority :) Funny I was just thinking I need some support , a friend some ppl in my life that "get it". I've been lurking on the message board for Aarons trach but nothing is going there. I've been looking around everywhere because lately I'm going crazy. Fed up with my nursing agency, & fighting with my insurance company has become a part time job. I need to find, talk to & interact with some ppl who ate living this life! Hoping you will see this & maybe direct me to your current group, FB page or somewhere to join....I'll be checking back to see if you post a response look forward to hearing from you. kwatts6215@gmail.com thx Anonymoushttps://www.blogger.com/profile/17393092850179580641noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-9355236695312650842013-06-27T20:37:56.756-07:002013-06-27T20:37:56.756-07:00Thank you all for your supportive words. xoThank you all for your supportive words. xoAnnhttps://www.blogger.com/profile/10834197308019791700noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-19873887949199449512013-06-26T08:01:50.142-07:002013-06-26T08:01:50.142-07:00I'll tell you...I am in your shoes lately. So...I'll tell you...I am in your shoes lately. Sometimes I wish I could swim away forever into the horizon. Hugs WhitneyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-29916680.post-28441530733596756102013-06-25T21:19:52.494-07:002013-06-25T21:19:52.494-07:00Also-- How r the girls? What is Hillary doing the...Also-- How r the girls? What is Hillary doing these days? How did Mary like school?Danahttp://laneahslife.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-29916680.post-40344362916521573122013-06-25T21:17:00.973-07:002013-06-25T21:17:00.973-07:00I wish I had profound words for u. I don't. ...I wish I had profound words for u. I don't. So I will just remind u to be gentle with yourself. We may have to sprint for moments on this journey but it's in the steps that we learn how to deal with our load. Cry, breath, walk, and find the peace u need to keep swimming. <br /><br />U have been on this path a long time. <br /><br />I am still here reading and soaking up your wisdom. Thanks for sharing.<br /><br />Btw--Rachel (Gabe's mom) and I were able to meet last week. It was sureal. We remembered that we found each other through your blog. We live close enough to lean on each other a little. :-)Danahttp://laneahslife.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-29916680.post-4154593003119396742013-06-25T09:58:43.830-07:002013-06-25T09:58:43.830-07:00XXXXOOXXXXXXXXOOXXXXElizabethhttps://www.blogger.com/profile/01661630983714342253noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-43487345059100342292013-06-25T06:54:43.610-07:002013-06-25T06:54:43.610-07:00Just Keep Swimming... (can't wait for "Fi...Just Keep Swimming... (can't wait for "Finding Dory") {{{HUGS}}}Cindyhttps://www.blogger.com/profile/08010271317286100910noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-36693020754963820582013-06-25T04:10:41.487-07:002013-06-25T04:10:41.487-07:00Well Ann, I do believe that the relative serenity ...Well Ann, I do believe that the relative serenity allows us to <i>feel</i> just how devastating the intense times were. You are paying the price of those intense moments when, as now, you recharge.<br />Understanding what those moments were emotionally also takes time and does not come with a handy description to make sense of them. You just feel them, often out of the context that you experienced originally.<br />Tears? I cry now if I see something sad in a Walt.Disney.Movie. <br />It is probably a delusion to think that we become stronger through these tough experiences since it wears on us. We do become wiser though, avoid commotion and extraneous effort better but that's because we simply can't do the things we used to do. The price.<br />But that's OK because we have achieved something. We put our effort into something so big and scary, that has some real concrete value. True, it appears fleeting, gone in a moment and on to the next catastrophe. But that is because these moments are not regular moments and part of the strain comes from trying to live them as regular moments.<br />The guilt is also <b>enormous</b> because you understand the degree to which an effort <i>needs</i> to be made. <br />You have rare sight, Ann and so you see just how bright the light is.Eric Fischerhttps://www.blogger.com/profile/02471331868560587898noreply@blogger.comtag:blogger.com,1999:blog-29916680.post-52966038915446938292013-06-25T00:19:23.747-07:002013-06-25T00:19:23.747-07:00Ann I'm sorry you're struggling. Maybe the...Ann I'm sorry you're struggling. Maybe the lull between storms leaves too much time to think? I don't know but it makes sense that being physical and occupied helps. I'm looking forward to meeting IRL in October and finally getting to have that drink together. Also, I know what you mean about Facebook. If you notice I don't use my last name on Facebook (or the blog) and the account is only for Trach friends. (I need some degree of separation and privacy. Which probably is silly from someone who blogs.) I have been more active lately because I've been participating in the Cerebellar Hypoplasia Group. I'll always find your posts on my dashboard even if you don't post links on Facebook. Love ya. (((((HUGS)))))Susanhttps://www.blogger.com/profile/16092188894818322564noreply@blogger.com