Sadness

As many of you know, I am active on a message board for parents of children with trachs. One of our moms just posted that her daughter unexpectedly passed away today. Her daughter was a twin. This is the third child on our trach board who has passed away within the last 6 months. I never met this mom or her daughter, yet I sit here tonight feeling such profound sadness. It's a reminder of how fragile our children really are. Life is fragile all the way around . . . but for our kids who rely on medical technology/intervention to keep them alive, the line between life and death is so very fine. We work so hard to create the appearance of normalcy; we make things look easy and under control. The fact is, there is nothing normal, easy or within our control when it comes to caring for a medically fragile child. I realize there is nothing easy about being the parent of any child. This isn’t about “my life sucks more than yours”. It’s just about being sad over the loss of a child that hits way too close to home. Hug your children, appreciate life and remember that none of us is guaranteed tomorrow.