Hope is the thing that is willing to take a chance on the future. Hope is the capacity to see something on the horizon that we are willing to move toward. If our hope gets us from today to tomorrow, and in that new day we are ready or able to deal with something we thought we couldn’t face, then hope has done its job. There is a worse thing than false hope. It is no hope.
Our son, Jack was born with an unknown subtype of congenital muscular dystrophy. Jack's disease caused him to have severe muscle weakness and he was ventilator dependent from four months of age until his death at the age of 15. This blog started out as a way to keep family and friends updated on Jack's spinal fusion surgery in the summer of 2006. Thereafter, it has become a window into Jack's life and the lives of those who loved him.
Our beautiful son died peacefully in my arms on January 5, 2014. Jack's journey is over. As Jack's mom, I now have to figure out how to live "Ann's Journey". I'm not sure where I go from here, but I know that wherever I go, Jack will always be with me, in my heart and guiding me in all I do.
Thank you for riding along with us on our journey.
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7 comments:
Thank you for sharing Jack's beautiful smile...that was a much happier note for sure.
Hooray-a smile!!
XOXO
ME
What a great picture of Jack, lovely to see him smiling again. I so wish there was something I could write/do for you that would help you. I know how precious it is to keep your life as 'normal' as possible even when others might not class it as normal!!
It is so difficult when you have to face things that you would rather never face and I know for me that is when I really struggle.
I think you are an amazing mum and you know we are all here for you. I think writing the blog could help as at least you get to express how you are feeling and is there any way you could escape to the beach for the day, as you must need sometime to yourself just to try and get over the last month. Thinking of you and sending lots of love,
Bea xxxx
That's more like the Jack we know and love! Give Jack a huge hug from me and Sam (and one for mum too)
Julie
Loving that smile!
Dawna
it's so nice to see a smile on his face.
becca
Jack has the BEST smile ever.
Love,
Tess
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