Update

Sorry for the break in updates. Nothing really exciting going on ... which is a good thing. I did email a picture of Jack's back showing the bumps sticking out to his ortho in St. Louis. He emailed me back saying that he reviewed Jack's x-rays and the picture and he thinks it's probably Jack's spinous processes (you'll have to google that if you want to know what it is :-), but it could be the spinal implants - although less likely. He wants us to see our local ortho to have it checked out (and then what???) We have an appointment in October with our local ortho and I don't really see any urgency in having it looked at sooner. The ortho also pointed out that we need to make sure he doesn't get pressure sores on those areas because as he says "if the spine implants are becoming prominent as the swelling subsides and the skin would breakdown the implants would become infected. We both know what that would mean for Jack." Yikes! Guess we'll have to watch those areas very closely. I do not want any more complications!

I got a call first thing this morning from Apria telling me they got the labs back and Jack's blood sugar is "critically" low. The woman asked me how he was doing. I wanted to say "oh my gosh, just terrible, he is flat on his back in bed and hooked up to life support". But, I didn't think she'd find the humor in it! I just got a call from our pediatrician's office and, of course, our doc isn't in this weekend and the guy who called hasn't a clue what is going on or why they are drawing the labs. He said there could be a lot of reasons for low blood sugar. I told him Jack was fine and he was okay with that answer. He also said Jack's vanc levels are now a little low. I asked about some other numbers that were elevated last time that are indicative of an infection. They are higher than last week. Ugh! He suggested I call the ID docs in St. Louis and give them this information. Yeah, right ... I'll get the on-call doc who likewise won't have a clue what is going on and will wonder why I am calling St.Louis when I live in Phoenix. It's not worth the hassle and it's unlikely they'd do anything with the information on a weekend. Our regular ped will be in on Monday, we'll see what he has to say, but I suspect there will be changes to his vanc dosage and who knows what else next week.

Not much else going on here. Mary is at Irish dance practice, Mark is out running errands, Hilary is on the computer, Eric is harrassing the dog and Jack is watching videos. My house is a disaster, but I just have no energy to clean. I am definitely in need of a swift kick in the pants to get me motivated to get up and move.

Hope you all are having a nice weekend!

*Cindy ... I crave "normal" :-)