Jack's Journey and Then Some: "Knowing Jack"

Wednesday, December 14, 2011

"Knowing Jack"

Jack's story finally made it onto the St. Louis Children's website. I contributed to the writing of the story and I'm very happy with the final version. It highlights what is special about Jack and what is special about St. Louis Children's Hospital. What a great gift for me this Christmas season to see Jack featured in a positive way and by a place that has played such a large part in our lives.

Here is the link to the story:

KNOWING JACK

5 comments:

CS said...: I was crying before the second sentence. Well done, Ann. Jack's smile is a treasure and you are a wonderful advocate.; 6:08 AM
CS said...: Also-that is a great picture of the 2 of you!; 6:12 AM
Susan said...: A very nicely written article, Ann.; 3:33 PM
The Marini's said...: beautiful, beautiful story!!; 8:56 PM
Anonymous said...: 2 thumbs up, Ann.; 10:13 PM

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Our son, Jack was born with an unknown subtype of congenital muscular dystrophy. Jack's disease caused him to have severe muscle weakness and he was ventilator dependent from four months of age until his death at the age of 15. This blog started out as a way to keep family and friends updated on Jack's spinal fusion surgery in the summer of 2006. Thereafter, it has become a window into Jack's life and the lives of those who loved him.

Our beautiful son died peacefully in my arms on January 5, 2014. Jack's journey is over. As Jack's mom, I now have to figure out how to live "Ann's Journey". I'm not sure where I go from here, but I know that wherever I go, Jack will always be with me, in my heart and guiding me in all I do.

Thank you for riding along with us on our journey.

Jack's Journey and Then Some

Wednesday, December 14, 2011

"Knowing Jack"

5 comments:

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