Sunday, December 26, 2010
Friday, December 24, 2010
Two more kids are down for the count - Mary and Hilary. The only one left standing (figuratively, of course) is Jack. It doesn't appear that Mary and Hilary have been hit as hard as Eric, so that is good. Hopefully they will be feeling better by tomorrow. Fun times at our house this Christmas!
Wishing you all a Merry Christmas filled with the love and laughter of family.
Wednesday, December 22, 2010
The little drummer boy is still sick. This flu has really knocked him down. I was a little worried yesterday about him being dehydrated and envisioned a trip to the ER for IV hydration if things didn't turn around soon. Today, he drank a good amount of Gatorade and seems to be feeling a little better. He should be back to par by the time the man in the red suit makes his appearance. I got a call from Kristi on my way home from work this evening telling me that Jack didn't have such a great afternoon. Here's hoping he isn't heading down the same road as Eric. When I got home, Jack seemed fine, so hopefully whatever Kristi experienced was an isolated event.
Time will tell .....
My shopping is done, my last day of work for the week is tomorrow, and I'm ready to just relax and enjoy a three day weekend. Well, I'm not sure there will be a lot of relaxing going on, but I'm looking forward to it nevertheless.
Thanks for checking in!
Sunday, December 19, 2010
Call us crazy, but we signed Eric up for drum lessons! At his first lesson, he was very intrigued with all the different drums, asked a lot of questions and breezed his way through the first seven pages of drum music. (The year of piano lessons really helped.)
Here is the little drummer boy showing off his sticks after his first lesson ...
Monday, December 13, 2010
The live Christmas tree is up and decorated ....
the family room is decked out with Christmas cheer
Christmas shopping is almost done; kids are in the final days of school before Christmas break and Hilary will be home on Friday.
All is as well as it can be ...
Friday, December 10, 2010
An excerpt from The Pursuit of Perfect by Tal Ben-Shahar, Ph.D
[T]he four benefits of suffering: wisdom, resilience, compassion, and a deep respect for reality.
Wisdom emerges from the experience of suffering. When things go well we rarely stop to ask questions about our lives and predicament. A difficult situation, however, often forces us out of our mindless state, causing us to reflect on our experiences. To be able to see deeply, to develop what King Solomon referred to as a wise heart, we must brave the eye of the storm.
Nietzsche, a wise man himself, famously remarked that what does not kill us, makes us stronger. Suffering can make us more resilient, better able to endure hardships. Just as a muscle, in order to build up, must endure some pain, so our emotions must endure pain in order to strengthen. Helen Keller, who in her lifetime knew much suffering, as well as joy, noted that "character cannot be developed in ease and quiet. Only through experience of trial and suffering can the soul be strengthened, vision cleared, ambition inspired, and success achieved."
Everybody hurts sometimes, and allowing ourselves to feel this universal emotion links us together in a web of compassion. The dictionary defines compassion as a "deep awareness of the suffering of another coupled with the wish to relieve it," but the only way we can gain a deep awareness of the suffering of others is by having suffered ourselves. A theoretical understanding of suffering is as meaningless as a theoretical description of the color blue to a blind person. To know it, we need to experience it.
One of the most significant benefits of suffering is that it breeds a deep respect for reality, for what is. While the experience of joy connects us to the realm of infinite possibilities, the experience of pain reminds us of our limitations. When, despite all our efforts, we get hurt, we are humbled by constraints that we sometimes fail to notice when we are flying high.
A deep respect for reality implies an acceptance of what is - of our potential, our limitation and our humanity. Recognizing that suffering is integral to our lives and that there are other benefits to pain, such as the cultivation of wisdom and compassion, we become more accepting of our suffering. And when we truly accept grief and sorrow as inevitable, we actually suffer less.
Sunday, December 05, 2010
Thursday, December 02, 2010
Wednesday, November 24, 2010
Friday, November 19, 2010
I'm participating in Love That Max photo carnival by posting my favorite picture of Jack.
I love this picture because it captures the very essence of Jack -- HAPPY! There aren't too many babies that would be happy while on nasal CPAP. Jack was about three months old in this picture. This was before the trach, the vent and the g-tube. This was before we had any idea that Jack had a neuromuscular disease. If only I had known where we were headed, I would not have been so stressed out about something as non-invasive as nasal CPAP. I would have held, snuggled and cuddled with this little boy so much more than I did.
Have a great weekend my friends!
(So much for a blogging hiatus, eh?)
Tuesday, November 16, 2010
As if I need something else to get the tears flowing these days. I downloaded Annie Lennox's new Christmas Album (A Christmas Cornucopia) from iTunes tonight and heard the song "Universal Child" for the first time. I can't imagine that this song won't move every parent to tears, but especially those of us with kids who struggle every day just to live and do those things that too many take for granted - our extraordinary children who are on this earth to teach us all to love unconditionally, appreciate the simple things, accept what we cannot control and to persevere through adversity.
I invite you to join me in a good cry .............
AND, thank you for all your kind and caring words. Although I may not sign on to blog as often for awhile, I do get all of your comments via email. So, know that your comments are received and much appreciated. I love you guys!
Saturday, November 13, 2010
So, I wrote a post on Friday night that I published and then deleted. It was way too "woe is me" that even I couldn't stand it. I should know to NEVER write blog posts on Friday nights. Friday nights have always been the toughest day of the week for me. I could give you all the reasons why, but if you don't live the life, you won't get it and if you do live the life, you already get it, so I'll spare you the explanation.
Things are just really hard for me right now. I miss my mom. It's hard losing your mom. It's exceptionally hard when you didn't get to see her before she died and when you didn't take the opportunity to tell her things you wish you had before she died. I find myself in tears every day.
Saturday, November 06, 2010
Thursday, November 04, 2010
Sunday, October 31, 2010
We enjoyed a quiet and relaxing weekend (if you consider getting up at 5:45am this morning and going on a two hour hike relaxing). I was listening to Christmas music on my iPod (don't laugh) on my hike and when I got to the top of the mountain and sat down to rest, the song "Simple Gifts" started playing. I closed my eyes and allowed myself to just hear and feel the words. I felt myself relax for the first time in a long time. The timing of the song was perfect and something I desperately needed to be reminded of.
Here is the version of the Simple Gifts that I was listening to (Alison Krauss and Yo-Yo Ma).
May you all have a week of peace and simplicity.
A special little boy is celebrating his 12th birthday this week. More on that later.
Monday, October 25, 2010
I finished the LA 1/2 marathon and I wasn't the last one across the finish line. Yea! I have to admit, I was a little worried as I was sitting on the shuttle bus that picked us up at the finish line of the race and drove us to the starting line. It was a loooonnngg bus ride and I kept thinking .... holy crap, how far are we going to go because I have to walk back to where we started! The first 10 miles weren't too bad. After that, I just wanted to be done. I'm happy to announce that I raised over
$1800 $1,900 for CureCMD. Thanks to all who supported me.
And this, my friends ... is why I walked the race (love him!)
Monday, October 18, 2010
I'm very fortunate to have extended many of my online friendships to in-real-life friendships. Regardless of whether I've had the privilege of meeting you in person or only online - the care, support and love I feel from my Internet friends is powerful and it is real.
To all my in-real-life, non-Internet friends, many of whom have been part of my life since long before the "Internet" became a household word - you are equally as special and I am equally as grateful for your love and support.
Thank you for caring about me and my family during this difficult time and thank you for taking the time to tell me so.