Sunday, August 30, 2009
Wednesday, August 26, 2009
Monday, August 24, 2009
The necklace is not yet available for sale - but soon. I've also got another designer working on a different necklace and I hope to have two choices available for sale.
Saturday, August 22, 2009
Actually, it's not just another Saturday. My daughter is 2000 miles away, settling into her new life. But, from what I hear ... so far, so good. Hilary's roommate doesn't arrive for another week - she isn't attending the special orientation that Hilary and most of the deaf/hoh kids are attending (although Hilary's roommate is deaf and is a cochlear implant user). Mark told me that it's a good thing they know some sign language because most the staff they've encountered so far are signers. I guess there was a reason he went instead of me - Mark has always been more adept at (and comfortable with) signing than I am.
Sunday, August 16, 2009
I've been trying my best to get Jack out of his room and out of the house on the weekends. I usually take him for walks around the neighborhood in the evening. Putting Jack in his wheelchair is no longer something I can (safely) do on my own. Jack is a two person lift and, to be honest, we shouldn't be lifting him at all. Instead, we should be using his lift - the lift our insurance paid good money to have installed over Jack's bed. I've been good and have used the lift two weekends in a row. It really is a pain to use and takes twice as long, but I keep telling myself, if I hurt my back, the pain will be much more real.
So there you go, everything you wanted to know (or not) about how we use the lift to get Jack in and out of bed.
Friday, August 14, 2009
Wednesday, August 12, 2009
I was looking through all my pictures on the computer and found this one of me and Jack from a couple of years ago. I like it. We both look happy (or we're putting on a really good front). Jack's smiles aren't quite as bright these days. But . . . his spirit remains as bright as ever!
We finally got Kristi back today. She's been out for over a week and while we've had a good replacement, it's just not the same. I don't like having strangers in my house. Unfortunately, I'm going to have to learn to adjust because nursing changes are on the horizon. The way the agency has things set up now, we will soon have four different nurses in our house every week. Four different ways of doing things. I'm sure it's hard on Jack too --having strangers in his face, touching his body and providing his care. But alas, I should not complain because the alternative -- no nursing care -- is not a viable option either.
Sunday, August 09, 2009
Weekends are a bit like rainbows; they look good from a distance but disappear when you get up close to them.
I decided it was time for a change of attitude and to get that, I needed a change of scenery. So, I forced myself to get up bright and early this morning and headed out for a hike on one of the many local hiking trails we have here in Phoenix. I used to hike on a regular basis a few years ago, but got away from it the year of Jack's spinal fusion surgery. It's amazing how much more productive your day is when it starts out with scenery like this:
Friday, August 07, 2009
Food for Thought Friday:
Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful.
Trying to keep it all in perspective.
Have a grand weekend everyone.
Wednesday, August 05, 2009
I'm feeling just a little beat up today. It's been a week of new nurses and no nurses and the next two weeks look to be a repeat of the same. I walked in the door from work today to a very stressed out kid. It took me over an hour and the Vest, breathing treatments, and lots of suctioning to get him to where he was comfortable. No nurse today, so Mark was home with Jack and while he is really good with Jack, he's just not as good at troubleshooting as mom is.
Monday, August 03, 2009
Thank you all for your kind and supportive comments to my last post. Sometimes, this is just really difficult. And I can tell you, it doesn't ever get easy. You learn to accept it, deal with it and even find those moments of happiness despite it, but it never gets easy and it never feels "right". But, you have your pity moments, your sad moments and a whole lot of pissed off moments and then you pick yourself up and you keep on keeping on. After all, if he can face each day with a positive attitude . . .
. . . I can at least try and do the same.
By Joni Eareckson Tada.....
My friend wisely replied: "God doesn't ask that of you. He only asks you to take one day at a time."
One day at a time. I can do that.