For Everything There is A Season
For everything there is a season,
and a time for every purpose under heaven.
A time to be born, and a time to die.
.JPG)
Hope is the thing that is willing to take a chance on the future. Hope is the capacity to see something on the horizon that we are willing to move toward. If our hope gets us from today to tomorrow, and in that new day we are ready or able to deal with something we thought we couldn’t face, then hope has done its job. There is a worse thing than false hope. It is no hope.
Our son, Jack was born with an unknown subtype of congenital muscular dystrophy. Jack's disease caused him to have severe muscle weakness and he was ventilator dependent from four months of age until his death at the age of 15. This blog started out as a way to keep family and friends updated on Jack's spinal fusion surgery in the summer of 2006. Thereafter, it has become a window into Jack's life and the lives of those who loved him.
Our beautiful son died peacefully in my arms on January 5, 2014. Jack's journey is over. As Jack's mom, I now have to figure out how to live "Ann's Journey". I'm not sure where I go from here, but I know that wherever I go, Jack will always be with me, in my heart and guiding me in all I do.
Thank you for riding along with us on our journey.
2 comments:
Beautiful!
Hi Ann,
I'm a NICU/PICU respiratory therapist currently taking online classes towards a bachelor's degree program at PIMA Medical Institute in Tucson, Arizona. I was searching on google a picture of a baby on NCPAP prongs for my research paper and found Jack's picture in the link below:
http://www.tracheostomy.com/forum/showthread.php?t=9698
First, I would like to say that Jack's history was very touching. Besides, Jack passed away on my birth day 1/5. I found it to be an amazing coincidence. I am glad he had a great loving mother and family to take care of him.
Lastly, I would to like to request your permission to use Jack's picture on my research paper which is related to something you know well (non-invasive ventilation in neonatal and pediatric patients).
If you give you me your permission, please write me your name and send me an email to j.henriq@yahoo.com
If you have any questions, please dont hesitate to ask me.
Thanks for your attention.
Joao H. De Carvalho.
Post a Comment