A little humor
Tuesday, August 08, 2006
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Hope is the thing that is willing to take a chance on the future. Hope is the capacity to see something on the horizon that we are willing to move toward. If our hope gets us from today to tomorrow, and in that new day we are ready or able to deal with something we thought we couldn’t face, then hope has done its job. There is a worse thing than false hope. It is no hope.
Our son, Jack was born with an unknown subtype of congenital muscular dystrophy. Jack's disease caused him to have severe muscle weakness and he was ventilator dependent from four months of age until his death at the age of 15. This blog started out as a way to keep family and friends updated on Jack's spinal fusion surgery in the summer of 2006. Thereafter, it has become a window into Jack's life and the lives of those who loved him.
Our beautiful son died peacefully in my arms on January 5, 2014. Jack's journey is over. As Jack's mom, I now have to figure out how to live "Ann's Journey". I'm not sure where I go from here, but I know that wherever I go, Jack will always be with me, in my heart and guiding me in all I do.
Thank you for riding along with us on our journey.
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6 comments:
OK, that bear is seriously dragging, but A) it's still moving and B) it looks like it's going somewhere (maybe home from the hospital???)
Hang in there you guys!
E
xoxoxo
Ann & Jack
I have been working all weekend and haven't gotten to a computer. Hang in there sweetie! Thinking about that polar bear..if he got mad and stood up...alot of folks would pay attention. I'm glad he's still moving. Moving is good. Did they culture the tip of the central line? My nurse brain is kicking in...and I've got lot of ideas swimming around. I'll check in on you later. Mac starts daycare tommorrow and this weekend is the first weekend that I haven't been "scheduled" to work. Big changes now.
Praying for Jack and you love. Keep the rear wheels moving.
Janet
Got home last night from our reunion and I was sorry to read what's been going on there. I'll call you either later today or tomorrow. Prayers being said round the clock.
Love you,
Anne
Whatever it takes to get there, LOL!
Hope you guys can manage to lift that head up soon. Keep hanging in there.
Sending lots of hugs
Julie
And this too shall pass.....
I pray for an early out and all good things with any infection Jack has. God and I are routing for you!!!
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