One Day Closer to Home

We arrived safely in Albuquerque tonight. Today was a little tougher on all of us. Mark actually let me drive (which is a 1st) because he is so tired. Jack wasn't very comfortable for most of the trip. Because he has to be in his body jacket and there is no way to take him out of it once he's in the car, we cannot change his diaper the entire day. He was completely soaked -- shirt and all -- by the time we got to our destination tonight. He also got a fat lip when the DVD player -- which sits on his chest -- fell over onto his face when I was trying to reposition him. I spent a good part of the day in tears every time I looked at Jack and he looked back at me with those questioning eyes. I wish we could put Jack in the car without his body jacket, it would make for a much more bearable ride, but I know it would not be prudent to do that. As if the ride wasn't difficult enough, as soon as we get to the hotel, Jack has to get the infusion of vancomycin -- a very nasty medicine that makes him feel even more miserable. Sometimes, this just sucks, you know?

Please pray for Jack's comfort tomorrow as we finish the final leg of this journey. Thank you.