We have a smile!

Mark emailed me a few pics of Jack today. We have finally "captured" a bit of a smile. As you can see from the other picture, Gumby goes everywhere with Jack (it's a Mark thing).

Things still look good for a Monday discharge day as long as Jack behaves himself over the weekend. We still have to get up to speed on the broviac, get things lined up with whoever is getting us the pump to administer the Vancomycin and figure out where we are getting the new formula Jack is on. The social worker was able to convince our insurance to transport Jack from the hospital to our friend Peggy's house via ambulance. That makes life much easier in the short term. Jack's nurse will be flying out to St. Louis again this weekend and will help with Jack the few days he is at Peg's house before we hit the road for home. Since Mark is already out there, he'll just stay and I'll be flying back out on Wednesday. I want to stay home as long as possible because both my girls are in school and it's a lot for my sister to have to get my kids to school and her kids to school. Eric is also having a difficult time with all the disruption. I'm just looking forward to the day we are ALL back home again. It's been one L--O--N--G month.

Someone suggested that I take advantage of this time to do something fun with my other kids. I couldn't think of anything fun to do here in Phoenix, so I decided I'd take the kids to Disneyland this weekend! They are beyond excited because it was so unexpected. We'll leave tomorrow after school gets out. I won't be taking my computer with me (hard to believe, I know), so the next update won't be until Sunday night. I hope you all have a wonderful weekend.

Thanks Ellen for the books and thanks Pat and Chuck for the chocolate. We are blessed to have such wonderful friends.