Don't ever forget . . .
Hope is the thing that is willing to take a chance on the future. Hope is the capacity to see something on the horizon that we are willing to move toward. If our hope gets us from today to tomorrow, and in that new day we are ready or able to deal with something we thought we couldn’t face, then hope has done its job. There is a worse thing than false hope. It is no hope.
Our son, Jack was born with an unknown subtype of congenital muscular dystrophy. Jack's disease caused him to have severe muscle weakness and he was ventilator dependent from four months of age until his death at the age of 15. This blog started out as a way to keep family and friends updated on Jack's spinal fusion surgery in the summer of 2006. Thereafter, it has become a window into Jack's life and the lives of those who loved him.
Our beautiful son died peacefully in my arms on January 5, 2014. Jack's journey is over. As Jack's mom, I now have to figure out how to live "Ann's Journey". I'm not sure where I go from here, but I know that wherever I go, Jack will always be with me, in my heart and guiding me in all I do.
Thank you for riding along with us on our journey.
6 comments:
When I was little, my grandpa used to say, "you're a good girl, Kari...don't let it go to your head".
That was grandpa-speak for "I love you".
Everyone speaks their own language, with facial expressions, with catch-phrases that, spoken from someone else's lips, would mean something else. With gestures and grunts and batted eyes and the set of the shoulders.
I learned that from Grandpa. It's come in handy with Milan.
I hear ya, Jack.
Jack, if Jordan could talk he would say..... "dude, where did you get that shirt? I need one."
Cathy
LOVE IT! LOVE IT!! LOVE IT!!!
I just can't get over how great Jack looks!! I'm kind of sad that I'm not going to be seeing him this weekend....
((((HUGS)))) Jack! Love the shirt.
Love, Amanda
I MUST have that shirt! Jack looks as handsome as ever. I do love his expressions. He looks like he's up to mischief and enjoying every minute of his t-shirt's message. Go, Jack!
I love that shirt and Jack looks amazing, as always!
Love Juliexx
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