Thursday, July 21, 2011

Blog Roll

I read a lot of blogs.  I read blogs that cover a wide range of subjects and topics - funny blogs, informative blogs, blogs about sick kids, healthy kids, typical families and families of kids with chronic health issues.  Recently, I started following a couple of blogs that are focused solely on raising children with special needs.  For most of the last twelve years, I've avoided the whole special needs arena as much as possible.  I've stayed focused on my role as the parent of a medically fragile child - not as the parent of a child with special needs.  I suppose that I take this approach because, in my mind, medical issues can be dealt with, managed and, in some cases, resolved, while special needs (according to MY definition of "special needs") are permanent and life long - they can be accommodated, but not resolved. Staying focused on the medical issues makes me feel like I have some control. (ha!)

One of the special needs blogs that I've been reading is written by a mom whose son is making the transition from being a child with special needs to being an adult with special needs.  She discusses the many issues faced by parents of older children with special needs.  It's an excellent resource and very well written, however, I've come to the conclusion that I can't read it anymore.  In fact, I need to stop reading all solely "special needs" focused blogs. I'm left feeling like a complete failure for all I don't do for Jack (some of these parents are definitely "super" parents) or  I'm depressed as hell at what the future holds.  Sometimes, it's all just too much to think about.  I prefer the head in the sand approach.

So, my blog roll is now a few blogs shorter, but I already feel like a weight has been lifted off my shoulders.  Does that make sense?

I still love to follow the blogs of my friends and fellow trach moms.  I love their humor and I enjoy keeping up with what's going on with them and with all their kids.  I love reading how they find balance in this crazy life, I love reading about the progress their incredibly "special" kids make and I love seeing their pictures.  They make me laugh, they make me cry and most of all they make me feel like I'm not alone.  I love all these ladies!


On a completely different note, we went to Eric's "meet the teacher" tonight and checked out Eric's classroom and schedule.  One of Eric's subjects this year is Mandarin.  They are teaching the kids Mandarin!  How cool is that?!

Now, it's time to get my medically fragile, special needs, happy, loving and absolutely wonderful young man ready for bed!

Love ya'


worthy said...

Ann, I do read special needs blogs too, and it makes me wonder just how people do it! Maybe it's my age, but I dont have the energy these days to do a lot of what I know I'm supposed to do. it's ok for the school staff - they clock off at the end of the day. I just do the best I can on little sleep and if that means letting Sam play on the computer all day at the weekends then so be it, I'm NOT superwoman :D

Sam's school have been teaching Mandarin to the children since they first started at age 4. Sam is fascinated by it, in fact he is fascinated by all languages. even though he doesnt speak, we know he understands an awful lot of different languages 'Ne Hao' Eric!

Anonymous said...

Hi Ann,

I haven't forgott about Jack or you. Please, tell me, "Is he able to move a figer or two, even a little bit?"

Also, if you were to email me at:, I would, most humbly, be honoured.

Yours truly,

Matt Kamaratakis

Susan said...

You have to do what works for you. I think there are no right answers. There is only so much time in the day and everyone struggles to "do it all". Especially parents of kids with special needs. I think there is a balance. Doing more for the SN child means less time for other things that are equally important. In the end the most important thing is that everyone in the family was (reasonably) happy. It sounds like you are working toward that goal for yourself. That is critical for the whole family. Love you!

bettyd said...

Ann -

I have some sand for you to use right next to me! I can't think too far in advance either.

Glad Eric is keeping you on your toes. My 10 year old's private school just added spanish to the lower school after years of French only there! The MS and US always had many language choices, but I don't think Mandarian is one - lots of Latin though!

Katie said...

I'm with ya there Ann....looking into the future isn't for me. I guess I must be a head in the sand parent too :) That is cool that Eric will be learning Mandarin.