Hope is the thing that is willing to take a chance on the future. Hope is the capacity to see something on the horizon that we are willing to move toward. If our hope gets us from today to tomorrow, and in that new day we are ready or able to deal with something we thought we couldn’t face, then hope has done its job. There is a worse thing than false hope. It is no hope.
Our son, Jack was born with an unknown subtype of congenital muscular dystrophy. Jack's disease caused him to have severe muscle weakness and he was ventilator dependent from four months of age until his death at the age of 15. This blog started out as a way to keep family and friends updated on Jack's spinal fusion surgery in the summer of 2006. Thereafter, it has become a window into Jack's life and the lives of those who loved him.
Our beautiful son died peacefully in my arms on January 5, 2014. Jack's journey is over. As Jack's mom, I now have to figure out how to live "Ann's Journey". I'm not sure where I go from here, but I know that wherever I go, Jack will always be with me, in my heart and guiding me in all I do.
Thank you for riding along with us on our journey.
9 comments:
Happy Birthday Jack! Have a wonderful year!
Sorry posted my message under James' e-mail. So both of these messages are from me.
Hope that Jack had a super great day.
Love,
Tess
What a great cake! It looks like Jack had a good time. Happy Birthdays are the best!
Love,
Kristy
Jack certainly looks to be enjoying his day, lovely to see xxxxx
What a sweet boy!! looks like he enjoyed being the birthday boy!!
Happy Birthday, Jack!! XOXOXOXO
So, so sweet! Love the Spongebob balloon and the cake (or pie) looks delicious.
What a special celebration for a very special boy.
Jen :)
Jack is such a handsome young man,,and he looks VERY happy!! Thosse are great pics!! Now he and Celia will be the same age for a few months!!
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