Hope is the thing that is willing to take a chance on the future. Hope is the capacity to see something on the horizon that we are willing to move toward. If our hope gets us from today to tomorrow, and in that new day we are ready or able to deal with something we thought we couldn’t face, then hope has done its job. There is a worse thing than false hope. It is no hope.
Our son, Jack was born with an unknown subtype of congenital muscular dystrophy. Jack's disease caused him to have severe muscle weakness and he was ventilator dependent from four months of age until his death at the age of 15. This blog started out as a way to keep family and friends updated on Jack's spinal fusion surgery in the summer of 2006. Thereafter, it has become a window into Jack's life and the lives of those who loved him.
Our beautiful son died peacefully in my arms on January 5, 2014. Jack's journey is over. As Jack's mom, I now have to figure out how to live "Ann's Journey". I'm not sure where I go from here, but I know that wherever I go, Jack will always be with me, in my heart and guiding me in all I do.
Thank you for riding along with us on our journey.
7 comments:
Oh my gosh Ann! #8 just breaks my heart.....especially the "for my mom" part.
What a sweet boy. And a funny one (we already knew that!) with the "Spongeboob" game!!
Of course #8 is so sweet.
Priceless!!
Yep, 8 got me too! and I just howled at the 'spongeboob game!' What a sweet boy he is xxx
If only Santa could bring #8! It's a little heartbreaking that our kids are thinking about such things at Christmastime.
Way to go big or go home, Eric! I love it.
I thought you might enjoy this:
http://www.stumbleupon.com/su/2nn1IV/www2.b3ta.com/host/creative/51303/1258327607/pole.jpg
Have a great day!
p.s. let me know if you can"t access the full website. This just reminded me of Eric
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