Safe and Sound

We arrived safe and sound in St. Louis.

I forgot how tough this drive is.  Eric did great except for about the last two hours of day two. He had had enough and was just wanting to get out of the car. He so desperately wants to fly home.

The getting Jack in and out of the car is getting tougher with each passing year.  He, obviously, can't ride in his wheelchair for the whole trip, so we put one of the captain's chairs back in the van and lifting Jack in and out of that chair is hard on one's back, to say the least.  Jack did well for the most part, but the transitions from car to hotel room and back to car were hard on him.  He was wiped out tonight and feel asleep before 10pm, which is very unusual for him.

While I really love all our St. Louis docs and I know that the trip is totally worth all the work, it makes me mad when I think of the lengths we have to go through to get Jack the quality care he deserves.

Anyway, after a good night's sleep, I'm sure I'll have more energy and be ready to tackle all the appointments and procedures scheduled this week and I am looking forward to spending time with friends.

Just a few pics from our time on the road: