The Source

I think I discovered the source of Jack's distress the last few days.  I was wracking my brain trying to figure out why Jack was completely "checked out" (in a way I had never seen him before) when he was in his wheelchair, but once he got home and out of his chair, he was fine.  It occurred to me that Jack is on a different ventilator when he is out and about in his wheelchair.  So today, I changed out the circuits on the home vent (the one hooked to the humidifier) and used it as his travel vent and he had a much better day today.  Clearly, there is a problem with our travel vent.  I called Apria and told them they needed to get the vent changed out here in St. Louis before we get back on the road.  There was some grumbling about the fact that because I have one working vent, why do I need the other vent exchanged right now.  I reminded them that I PAY for TWO VENTS and they will damn sure provide me with two working vents at all times.  I didn't make them bring out a new vent tonight, but it had better get here in the morning!

Jack saw his orthopaedist today and we learned that one of the largest screws inserted into his bones when he had spinal fusion surgery has broken off.  It's one of the anchor screws that goes into his left pelvis. The ortho says that it shouldn't be a problem and shouldn't cause Jack any pain.  I'm not entirely convinced.  Here is the x-ray - it makes me sick to my stomach just to look at it :(

obvious broken screw on your right. 

Despite the broken screw, Jack was in a much happier mood today, so I was able to get some pictures of the boys.

Nothing better than starting your day off at Starbucks. Sadly, Jack only gets to experience the atmosphere, not the taste of Starbucks (but he doesn't seem to mind!)

Waiting for our next appointment. 

And no better way to end your day than outside on the deck enjoying the beautiful St. Louis Fall weather with a couple of these

Jack has a bronch/EUA tomorrow and thankfully he doesn't have to be to the hospital until 1:45pm.  I am so sleeping in tomorrow!

Thanks for checking in and for all your well wishes.