Monday, November 26, 2007

Jack Update

Note to Jen in Texas - we moved from Phoenix to St. Louis in 1996 so Hilary could attend CID/The Moog School. We moved back to Phoenix in 2002. If private insurance doesn't pay for the device, our Department of Developmental Disabilities will - however, then they own the system - not us, which I don't like. Our private insurance is typically very good and should cover this device. Thanks for your input though, it's much appreciated.


Jack tried out the eye response system from Eye Tech today. This system is so much easier than the other system to calibrate Jack's eyes and you only have to calibrate it once, not every time you use it (unlike the other system). Hopefully our insurance company won't "choke" at the $12,000 price tag! Here is a video clip of him using the system. His eyes are moving the cursor and, as you can see, he is all over the place. It will take awhile for him to learn to stay focused long enough to make a choice - but everyone feels confident that Jack will figure it out and do great things with the system. What was so awesome was hearing how excited Jack was to make something work with his eyes . . . you can hear his gleeful voice in the video.

We are two weeks post radiation and the results so far have been negligible. I emailed Jack's neurologist asking how radiation that is powerful enough to kill cancer can't stop the saliva from flowing. He told me not to give up yet, that he has seen it take between 4 and 6 weeks for maximum results. So we wait and hope for tangible results. Just another lesson in patience . . .

If things go well, the remainder of this week should be uneventful and quiet. May you all have a peaceful week.



julie w said...

Wow Ann, that looks pretty cool! Hope the insurance co cough up!!!
Sorry the radiation doesn't seem to have made much improvement, hopefully it's just a matter of time.

Anonymous said...

oh my that is AMAZING!!!
i cannot wait to see Jack get the hang of it. Keep us posted that is so great
xo christina

kristy said...

cool machine. Jack will figure it out in no time!

Anonymous said...

That is so way cool. Jack is going to have so much fun using it. I wish him all the best with figuring it out.

Anonymous said...

That is VERY cool!! Wow-I'm amazed. I just don't understand how all this stuff works! Go Jack :)


Jen said...

I'm sure you have done your research ... but wanted to make sure you knew about Missouri's AT program. I know you said Hillary went to Moog ... so I assumed you are in MO ;) Texas has an assistive technology program and will cover devices every 5 years to aid in communication if a person cannot access phone technology. Eye gaze is a little more than a TTY or switch system, but hey, why not ask ?! Check out these two websites if you haven't already ... if so, sorry for double information!

Take Care,
Jen in Texas

Anonymous said...

Ann -
This is so great! I am sure that Jack will get it. I look forward to seeing a message from him posted to this blog!

- Betty

Anonymous said...

That is so cool. I hope you get approval soon and don't have to fight for it!