This and That

(darn, I've already used this blog title before too!)

I don't have a lot to write about, but I felt the need to bump my last post because it's had me depressed all week.  I love ALL my children to the moon and back, but sometimes it just bums me out that I don't have the "typical" family with four "typical" kids.  I'm not naive to the fact that there are many parents whose typical kids give them more grief than my kids with special needs will ever give me.  But, it doesn't negate the feeling that I wish things had been different.

In other news:

On Monday, I received a phone call from the cardiologist's office at St. Louis Children's Hospital telling me I needed to reschedule Jack's appointment.  When I asked whether I had to schedule a different week and was told "yes", I calmly told the scheduler that I could not reschedule a different week because I'm driving 1500 miles to see FIVE doctors that week and I'm not (nor could I even if I wanted to) rescheduling all his other doctors.  I told him that he needed to get Jack in to see a different cardiologist.  The next day, I had an appointment with the head of cardiology (who I hear is not the most personable guy, but as long as Jack gets his ECHO and EKG and has them read, I don't really care who I see).

Crisis averted.

My nursing agency is giving me grief about Kristi working overtime.  I need coverage one weekend evening in September and Kristi said she could work. The scheduler told me "well, that puts her into overtime".  I don't really give a rip. This agency gets paid well over $8000 a month from my insurance company, they don't remotely staff me the number of hours I've been approved for, and they can darn well pay a few hours overtime to get me coverage I need.  Wouldn't you agree?  

I think I've had enough advocating for one week.  Well, actually, given my profession,  I guess I'm always "advocating".  Let's just say, I've had enough advocating for myself/Jack for one week.  I know, I'm a lightweight.  But, I'm tired.  

I'm tired a lot.

I don't know if it's the culmination of 19 years of advocating for my children with special needs or whether it's being almost 50 and the change that goes along with that. 

Regardless, I'm just bone tired lately. 

Well, I think I've sufficiently filled up enough space with words to hopefully make it worth your while to check in on us.  Time for me to go to bed get Jack ready for bed.  I'll leave you with a few pictures.

Anyone else's kids into these bracelets?

contemplating his next move

Eric told me this week that there is one thing he doesn't like about 3rd grade.  "We have to be buddies with the Kindergartners and I'm not really fond of little kids".  

Ah, to be too grown up for "little kids" by the age of 8.  

Thanks for stopping by my friends.