My Letter
Check it out - far right column under and also worth noting ... first item.
Hope is the thing that is willing to take a chance on the future. Hope is the capacity to see something on the horizon that we are willing to move toward. If our hope gets us from today to tomorrow, and in that new day we are ready or able to deal with something we thought we couldn’t face, then hope has done its job. There is a worse thing than false hope. It is no hope.
Our son, Jack was born with an unknown subtype of congenital muscular dystrophy. Jack's disease caused him to have severe muscle weakness and he was ventilator dependent from four months of age until his death at the age of 15. This blog started out as a way to keep family and friends updated on Jack's spinal fusion surgery in the summer of 2006. Thereafter, it has become a window into Jack's life and the lives of those who loved him.
Our beautiful son died peacefully in my arms on January 5, 2014. Jack's journey is over. As Jack's mom, I now have to figure out how to live "Ann's Journey". I'm not sure where I go from here, but I know that wherever I go, Jack will always be with me, in my heart and guiding me in all I do.
Thank you for riding along with us on our journey.
6 comments:
That letter was so well written. Great job articulating your thoughts ... I feel like you just spoke for all the parents out there of special needs children!
Excellent letter. You say it so well.
Kristy
I am so very proud of you!!!
Anne
In your next life you need to be a published author. You have a talent. Well said.
Carol (Zachgram)
Very cool, Ann!!
sniff, sniff. Ann, that was a beautiful letter. Very well written indeed.
I hope that the future doctors who read it will listen to it and take it all to heart.
Tess
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