Pictures
I'll post an update later this evening, but here are some pictures of Jack today. He's watching his favorite movie - Shrek, yet .... still no smiles.
Wednesday, August 02, 2006
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Hope is the thing that is willing to take a chance on the future. Hope is the capacity to see something on the horizon that we are willing to move toward. If our hope gets us from today to tomorrow, and in that new day we are ready or able to deal with something we thought we couldn’t face, then hope has done its job. There is a worse thing than false hope. It is no hope.
Our son, Jack was born with an unknown subtype of congenital muscular dystrophy. Jack's disease caused him to have severe muscle weakness and he was ventilator dependent from four months of age until his death at the age of 15. This blog started out as a way to keep family and friends updated on Jack's spinal fusion surgery in the summer of 2006. Thereafter, it has become a window into Jack's life and the lives of those who loved him.
Our beautiful son died peacefully in my arms on January 5, 2014. Jack's journey is over. As Jack's mom, I now have to figure out how to live "Ann's Journey". I'm not sure where I go from here, but I know that wherever I go, Jack will always be with me, in my heart and guiding me in all I do.
Thank you for riding along with us on our journey.
13 comments:
Poor wee Jack, we are really missing your smile.
Love Julie
Hang in there Jack. Tell your Mom to get some rest too. Yeah i know shw won't listen. ha ha
Take care of yourself Ann.
Hugs
Robin
hi mom.
tell jack that mary says hello and that she misses him. i miss you too, ill probably call you tonight.
mary
Ann, poor sweetie!! Jack is such a trooper. I hope you are able to get a little rest (mental and physical).
Hugs and love to you and Jack,
Whitney
Poor Jack, he is looking much less swollen and i hope he continues to get better. I hope he smiles for you soon
Ann,
If it aint' one thing it's twenty others. You both are the bravest folks I know...but like you have a choice! You just do it because you have to and because you love them. Ann you are awesome and Jack is just beyond words. I'm very proud of you for NOT throwing the ventilator at them. Doesn't mean you can't suddenly get violently ill and throw up on them...second best for me.
Chin up woman, we love you!
Janet
Jack looks so much better, but still no smiles :( Poor little bunny!
Hugs,
Dawna
He looks so much better - that first smile can't be far away. I hope you are both able to rest and keep up your strength. You are both amazing!
Take care, Leigh Ann
Ann,
It is natural that Jack is not yet feeling like smiling. He probably feels groggy from the pain medication and having that brace on is probably not something he is used to yet. For how long does he have wear it? Tell Jack I like Sherk too. They made Sherk 3. I'll bet he will want to see it.
Martha.
Poor little guy! I will be glad for you when he gets a smile on his fact! Keep the faith!
Gloria
Jack does look better in those pics. His smile will be lighting up your day very soon...
Just know we continue to pray for his healing and strength for all.
Hugs!
Jennie
Ann -
I hope you see smiles soon. My Will is very similar - he is non-verbal among other similarities - and we always know he is just not right if he won't smile. At least you understand that, so can tell the Team for Jack.
Here is my joke for the day (political, though). An aide comes in and tells Pres. Bush that 2 Brazilians were killed in Iraq today. Bush quiets down, prays, then looks up and ask the aide - how many is a brazillion anyway?
- Betty
I know that look... He probably won't smile until you tell him it's time to go home:-)
That's quite a body jacket Jack! Looks like two pieces front and back, they did a nice job on that.
Hang in there Jack and Ann!
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